I’ve Returned | Filed under About Me
I have been away longer than normal but here I am stumbling back to check in and share with you a few things that has been going on in my life. The last time I spoke with you, I was to share the Real Story but I have changed my mind. There is nothing wrong with that after all I am a female. I also can not share the Rest of the Story because I have more Cardiology (heart) testing that has not been completed. In the meantime, I continue to enjoy each day to the best of my ability. There are some days my ability does not seem to be much for many but to me it is and that is all that matters. Missy ( the big bad Multiple Sclerosis) is always present never leaving. I have been spending more of my time learning to come to terms to adjust and to accept changes. Just about the time I think I have it ….here comes another change……it is just a way of life a new way of life little stability always subject to change.
I found a wonderful new site that has helped me so much deal with Missy and given me a new and refreshed outlook on a few things. I will be sharing some with you overtime so you will understand my life more. One day, I might seem to be good and the next day I will be full of complaints….that is Life with Missy. I am now accepting it instead of denying t as I did for so long.
The fatigue is my worst symptom and this is what it sometimes feels like to me….
walking in deep water up to your neck (like on Amazing Races Sunday Night) oh but add some weights to carry.
sometimes I will even put off eating because it takes too much energy (if you looked at me you would never believe it but I do)
it takes a certain amount of work to “decode”, to take something in, to digest it.
it takes a much greater amount of work to “encode”, to be able to put thoughts and words together and send something back out.
Why am I sharing this, certainly not for pity just so you will know on those days I am away what is going on. I guess I am opening my door a little more to you. I have been hiding so much yet so many of you are the reason I am still here. Thank you for being my friends and always stopping by The Porch.
Now for the most important part of my post, one of my very dear blogging friend’s niece will be having surgery this Wednesday, 15th. Deni’s niece, Tara, is 27 a mother of 3 young children. She has a brain tumor and an aneurysm. The tumor is not operable due to its location but is dormant. The surgery she will be having is for the aneurysm that was found in the frontal lobe.
I ask you to take time to send special thoughts or prayers for this special family during this difficult time. So please do me a favor one more time and let Deni know you will be keeping her niece in your thoughts and praying for her or sending positive energy her way. You can visit Deni here.
Until we meet again remember Life Is Simple Good.
November 14th, 2006 at 3:21 pm
I would not wish Missy on anyone Vickie, hang in there hon I’m still keeping my prayer for a cure ongoing. And I just visited Deni too, and am keeping Tara in my prayers!
November 14th, 2006 at 3:39 pm
I’m glad that you are a part of all of our lives…with or without Missy, just so long as we have you.
Take care of you.
November 14th, 2006 at 3:44 pm
I don’t know what I would do without you in my life and don’t intend to find out. You’re always there for me no matter what and you know I’m here for you to lean on too.
I agree with the fatigue description, every breath takes a lot of energy. I’m glad you found that site and it has helped you. You’re a treasure and I want you to feel better. You’re in my daily prayers and I will send some extra your way.
My prayers are going out to Tara and Kayla too.
Gee whiz, I love ya, girl friend!
November 14th, 2006 at 5:14 pm
I am glad you updated, I was getting worried about you.
And I always want to send you big hugs and thanks for posting this.
I am really amazed at the outpouring of love.
November 14th, 2006 at 11:21 pm
My prayers are with Tara and her family. My prayers are ongoing for you, Ms. Vickie. You’re a blessing to me.
November 15th, 2006 at 12:58 am
Hi Vickie, its good to hear that you are still the same brave lady we all know and love, take care.
November 15th, 2006 at 1:50 am
Glad to have news from you. MS is such an invisible weight. Most people look at someone with MS and dont realize there is anything bothering them. Fatigue is a huge thing to live with. I am just glad that you can find energy to keep up with the blog at all.
November 15th, 2006 at 1:48 pm
Radiation to the brain and chemotherapy cause some of the same insults to the brain that the brain lesions of MS do.
Among those who have had radiation to the brain, short-term memory loss, attention deficits and fatigue are rampant, our family has personal experience with these issues.
I don’t know if you have tried or considered trying some of the medications that are used to treat these problems, but I checked this morning and I see that the same drugs used for brain tumor patients are used for MS.
Steven has had good results with ritalin/concerta (methylphenidate) for attention problems, and his school performance has improved dramatically, he’s in the GATE (gifted and talented) program now.
I know several adult brain tumor patients who take provigil (modanifil) with very good results.
If you haven’t tried these you might ask your doctor.
My father was diagnosed with CIDP (chronic inflammatory demyelinating polyneuropathy) two years ago, same disease process as MS but it affects the peripheral nerves instead of the brain.
He is seeing a specialist, one of only about two in the US since CIDP is such a rare disease. This guy said that IVIG (intravenous immune globulin) injections are curative for MS and CIDP in some patients, it is the only treatment that will cause the myelin to regenerate. All the other drugs just slow down the progression.
Maybe something else to ask about.
Our prayers are with you.
November 15th, 2006 at 6:16 pm
It is good to “hear” from you again! Wanted to let you know I’ll always be there there when you need me. You are so very special, and I adore you, my sweet friend.
November 15th, 2006 at 6:18 pm
A day at a time
November 15th, 2006 at 10:08 pm
Glad you’re back. I’ll say a prayer for Tara, Deni, and you as well. Who couldn’t use some prayers, after all?
November 16th, 2006 at 12:11 am
Take it one day at a time, Vickie…or one minute at a time, if need be. I’ve had to resort to that myself some days. Be open to the simple pleasures of every moment.
November 16th, 2006 at 3:42 pm
Glad you are doing okay. I was beginning to worry. I like the new look of your site–very you.
November 17th, 2006 at 9:33 pm
I’m glad you are back Vickie. I was worrying a little.