Live each moment for what it is | Filed under General
I live each moment as it comes not knowing what the next brings as I still have no true answer as to what is going on with my health. More testing is being done to determine what is the underlying problem behind the blood abnormalities. When I saw the Hematologist/Oncologist my Hemoglobin and Hematocrit was even more elevated from the last one BUT he feels very strong that we are dealing with a BENIGN Hematologic (blood) disorder. Additional lab tests were done when I saw him , sonograms and CT scans are scheduled for tomorrow. In the meantime, the major concern is to make certain I have no clots form so I was warned the signs/symptoms of clots and also warned the signs/symptoms of strokes. These are two common side effects seen in the Erythrocytosis or Polycythemia Vera which is what he feels is the most likely condition I have. It will be treated by addressing any underlying contions which might contribute to it such as my blood pressure and sleep apnea as well as phlebotomy(removing RBC’s) using a needle and medications. The sad thing is even with the phelbotomy being done the blood will just have to be discarded it can not be donated due to Missy. By the way, I don’t like needles and have poor veins. I will return to see him April 4th to discuss the results of all the tests and the actual direction things will go but all in all things seem fine.
Right now I am sleeping 14 to 16 hours a day and extremly tired the remainder of the time, I actually do not seem to find the energy to find my way to the computer these days and for that I apologize to each of you but I will be back. I appreciate each of you who stopped by, your comments, your special thoughts and prayers. Thank you to those who sent their readers my way, those who dedicated songs to me and a very special thank you to the special young lady who asked her whole school to pray for her mother’s friend who was sick and might have cancer, Julia you are a delight. As Mother Teresa once said ” We can do no great things, only small things with great love” and you certainly did show me your love and it was GREAT and for that I thank you.
March 27th, 2006 at 11:37 pm
I’ve been so worried, and have been constantly checking for word from you….I’m immensely relieved that your doctor feels that your blood problems are due to a benign cause. Clearly, there is still much to be uncovered and done, but that’s a great start. Be kind to yourself and get lots of rest, Vickie; many prayers are being said on your behalf.
March 28th, 2006 at 12:20 am
You just sleep and get plenty of rest. We will all still be here when you feel like visiting. I’ll send plenty of good thoughts down south.
March 28th, 2006 at 1:17 am
Hi Miss Vickie ~~ Do hope you are feeling better, and get good results from all those tests. Not fun are they?
Wishing you all the very best.
Cheers, Merle.
March 28th, 2006 at 1:38 am
hugs my friend! So glad to see a post from you today. Stay strong and remember you have a whole blog world praying for you.
March 28th, 2006 at 1:54 am
So good to hear from you; I was starting to worry. Sending warm thoughts and prayers your way.
March 28th, 2006 at 3:01 am
I hope everything comes out well. Many prayers and warm thoughts your way.
March 28th, 2006 at 3:10 am
Many people here are praying for you. Find out what it is, then they’ll know what to do next.
March 28th, 2006 at 3:18 am
I’m glad we don’t think it’s cancer! You are always in my thoughts and prayers, Vickie. Thank you for the update. You get all the rest you need.
March 28th, 2006 at 3:27 am
I truly appreciate your posting, Ms. Vickie, and will continue to pray for a good outcome. Get all the rest you need, and know that we love you so much.
March 28th, 2006 at 4:40 am
Hang in there and first and foremost, take care of yourself Ms. V. You are in my prayers.
March 28th, 2006 at 6:00 am
Hi there. I found your blog by typing in Polycythemia Vera into blogspot. I have PV. I am 32 and live in Canada. Before I was diagnosed, I slept all day as well. I have had many phlebotomies. Not as bad as they sound
It IS sad that the blood can not be donated 
A sure way for your hemolologist to find out for sure if you have PV or not, is for him to do a bone marrow biopsy. I will keep you in my prayers, as you continue on 
March 28th, 2006 at 11:08 am
I’ve been thinking about you and keeping you in my prayers. I’ve wanted to call but Monica told me how tired you were yesterday. I’m keeping tabs on you
Take care, my dear friend. Remember you’re loved. *HUGS* Let me know if you need anything!
March 28th, 2006 at 12:32 pm
Good to hear from you Vickie. Sorry you are struggling a bit, but we all know your inner strength. And you know the circle of strength we share for you. KerBear’s going through a little rough spell as well. I’ll just keep reminding myself about the good things that good people deserve. You know you have a little piece of my heart.
March 28th, 2006 at 12:47 pm
Ms.Vickie,
For all your trials and tribulations, you are the most blessed woman I’ve seen on this blogging thing…. you are loved by many.
What a powerful healing tool!
God Bless.
March 28th, 2006 at 1:50 pm
Vicki, You are in my prayers and thoughts. I am guilty of my own complaint, but, know you are thought of daily. I hope you can kick this thing in the butt and tell it syonara! (sp)
Big southern hugssssssss
March 28th, 2006 at 3:50 pm
Stopping by to catch up. Sorry that you are struggling so but at least it is benigh. We will keep you in our thoughts and prayers.
March 28th, 2006 at 4:50 pm
Vickie, you take care of you and we’ll take care of the prayers. Julia still has them say a prayer every morning at assembly (I love that she goes to private school). When I registered I told them about my friend and they said if anything was needed to just give the dr. info and your name to them because I want to see if I match YOU first. Take care, friend.
March 28th, 2006 at 6:10 pm
Vickie, it is good to hear from you. Keep resting and we’ll keep praying.
March 28th, 2006 at 6:29 pm
Vickie,
Good luck with the scans today, its good that the doctors are being so thorough. You get all the rest you need and just focus an getting stronger. We will be thinking of you.
Lots of love.
March 29th, 2006 at 7:49 am
Thank God! When you didn’t post, I was afraid the news was much worse. Get as much rest as you need, my dear. We will all be checking in just to make sure. Please let me know if there’s anything I can do to cheer you up. I’m praying for you sweetie!
March 29th, 2006 at 12:41 pm
Vickie,
I have been so worried about you. I lik eto hear the word benign. But I am so sorry that you are so tired. Keeping you in my thoughts and prayers !
*HUGS*
March 29th, 2006 at 5:56 pm
Hi Vickie,
I certainly have you in my thoughts and prayers too. I think we all understand about the tiredness you feel from seeing doctors and taking tests, and also how exhausting it can be to blog post sometimes. Hang in there, get some rest, and feel better soon! Love ya!
March 29th, 2006 at 11:46 pm
You are still in my prayers, I thought and prayed for you often while I was gone.
Take care, and I pray the doctors have wisdom to treat you and make you better!!
*HUGS*
March 30th, 2006 at 12:33 am
I think of you every day. I may not get by as often as I’d like, but never doubt you’re always on my mind and in my prayers.
March 30th, 2006 at 2:49 am
Vickie you are loved so very very very much. I am at this moment gathering much energy to send it your way for healing and better health.
And please do not apologize to anyone for your lack of energy in getting to the computer. You need your rest.
I LOVE YOU:)
March 30th, 2006 at 3:21 am
Best wishes from this end of the world. My prayers are with you, Miss Vickie.
And if you have any tolerance for big. sloppy, dog-kisses, well, I have those to spare too.
April 1st, 2006 at 6:14 pm
Don’t ever apologize for putting your health before your blog! You are in my daily prayers and I just know in my heart that you will get past this and go on to greater adventures!
April 2nd, 2006 at 1:03 pm
Sending lots of good thoughts and hugs your way…