I agreed to participate in an interview meme that is going around the blogosphere actually it is more like I asked to participate after I read Brian’’s interview. Brian over at Audience of One, happens to be a blogger that inspires me, one that I respect and call a friend and one who has been allowed to see and know just who Always Victoria is. I knew if he chose to ask me questions they would be well thought through questions which would allow you, my readers, to know me better and would also allow me to know myself better if I chose to reflect on the questions and answer them after adequate reflection. So here are the answers to the questions and prepare yourself for this is really long. Please accept my apology in advance..
You’ve overcome a great deal of adversity in your life. What has this adversity taught you? When ?
In 1989 I was diagnosed with Multiple Sclerosis, my first reaction was relief for I had felt certain it was a brain tumor. Being a Registered Nurse, I have just enough medical knowledge to be concerned and know I need to know more for I am dealing with a dangerous issue. Once it settled in I realized what I was dealing with and things did not look so good for at that time there was no treatments available for Multiple Sclerosis as there are today. This was during the prime of my life, my husband and I were enjoying so many things together and making the all important decision of starting our family. After much discussion with my physician, my husband and I chose not to have children, the decision was not because I had MS but over the concern if I could me the mother I would want to be knowing one day I might not be able to go watch my little boy play ball or take my little girl to her dance lessons because the disease had progressed. I made the choice so I would not be selfish and bring a child into my life and possibly burden them with having a mother who was disabled. However most people with MS have Relapsing Remitting form where you have periods you are free of symptoms which was my case. Life continued to be simply good until one day oh my the MonSter reared its head again and reminded it was around. However there was some good news, much progression had taken place and there was now drugs out there to treat the disease. Over time I have been on three of the five drugs approved to treat the MS but the disease has continued to progress until I am no longer considered Relapsing Remitting but I am now Secondary-Progressive which is normal. 50% of people with relapsing-remitting MS develop this form of the disease within 10 years of their initial diagnosis.
Having climbed the corporate ladder to the position of Associate Vice President, five years ago the severity of my disease was to the point, I chose to take matters into my own hands and leave the company I loved working at on long term medical disability. At that time, I was seeing a new neurologist who treated only patients with Multiple Sclerosis and he believed in working with you and being as aggressive as you wanted. After discussions we chose to be very aggressive, I went 150 miles three times a week for six weeks for treatment and at that time I was able to continue in my home for I could once again walk but one of the medication had a side effect I would learn to dislike, .weight gain. A trade off I made but in the long term process I gained over 100 pounds, yes I could walk but barely ecause now I was obese. However there was no stopping me, I knew I could over come this if I wanted to. I begin to make changes in my lifestyle. I have lost a total of 120 pounds and still have some to lose and it is very difficult because of the limitations in excerise I am able to do due to MS but it can be done as I know and it will be done slowly but surely.
Through all this I have learned to enjoy life, take nothing for granted my next minute could change and render me paralyzed. Enjoy the small gifts in life for in most cases they will be the most important ones. Tell the ones you love how you feel and there is never too many times to say it if you mean it. Express it in your actions don’t just say it for actions speak very loud. If you encounter someone wit a disability treat them no different for they are human. If they were you friend before, PLEASE be there for them later for this world can be lonely when your life undergoes a major change. Educate your children about disabilities so they will understand and will treat those they see in wheelchairs and scooters no different. I life minute by minute not day by day as so many do because normal people often say they live day to day for financial reasons but I live minute to minute hoping for no progression but not allowing it to control my life just enjoying every opportunity that comes my way. I am a better person today because a MonSter called Multiple Sclerosis knocked on my door in 1989. I do regret the decision to not have children but I also know it was the right decision for the reason we made it because no I can not do all the things I would want to do that a mother should do with her children.
Think of something you’ve never written a post about for whatever reason. What is it? Write a short version of that post.
I have thought of so many things to write about and have started over so many times but at last this one seems right. Normally I don’t talk about Religion here for everyone has an opinion and they are all so different and each person is entitled to their own. I respect each person and their own opinion and this is MY blog and this will be my thoughts with MY request. I am a deep spiritual person and a Christian but that does not mean I am any matter than anyone else now having said that have you ever thought just What Is The Power Of Prayer? Here are some of my thoughts—
I suppose there are many answers to this question.I believe that the power of prayer is first felt inside of us. It’s a sense of God’s assent, somewhat like someone answering our phone call when the phone has been ringing for a long time and we’re wondering if maybe we should just hang up and try again another time. Then a voice answers and simply says, “I’m here. I’m listening to you.” Communication has been established! God has assented to our calling. God has assented to be in relationship with us. God has assented to us — to you, to me, to who we are and who we hope to be. “But why?” you might ask. “And why now?” Because that is God’s deepest desire and what God has been hoping for all along. I believe that we experience the power of God when we sense God’s assent to our seeking and even realize that God has been reaching out for us all along.
The power of prayer is the power that comes to us when we realize that God can be our point of reference in the midst of all the confusions of our daily lives, the steadfastness of God rather than the incomplete, fragile inconstancies of ourselves. It’s the power that comes when we’re able to be centered, anchored in a belief and rooted in a Truth, which is stronger and deeper than the day-to-day truths we struggle with.
The power of prayer is the constant renewal of perspective. Prayer opens our eyes. It extends our horizons. It sheds light into the darkness of our fears and our sorrows, our hopes and joys, our shame and our pride. It gives us new ways of seeing life and relationships, of understanding work and the cost of growing.
The power of prayer is real and palpable. You can feel it and know it and depend on it. It comes to us as a gift, but we need to do our part as well. God calls us to pray and through our prayer, God empowers us and gives us strength.
The power of prayer is awesome and immeasurable. It brings God close to us so we can listen. He suggests–we ask–we thank–we listen. It is a challenging, blissful round robin.
Having said what I have about the power of prayer now I would like to ask those of you who might believe in a similar manner for a favor. My 17 year old god child who is also my niece was in a sever auto accident Tuesday afternoon. She has sustained closed head injuries, internal injuries, fracture of her pelvis, severe facial lacerations, and the least goes on. She is in the Trauma Intensive Care Unit on a ventilator in a coma due to the severity of the head injury. If you believe in prayer or healing power of positive thoughts would you please keep Kristin in mind. I would appreciate it as would her parents and her younger brother Matt.
Now I understand why no matter what I wrote it just did not seem right but this one does. Having said that you will understand why blogging might be off some .
What blogger has inspired you the most? Why?
I know you asked me what blogger has inspired me the most but I am going to change this just a small amount here for I can not tell you which blogger has inspired me the most. Instead I am going to tell you how I got started blogging. My husband was familiar with political blogs and he encouraged me to start one. After listening to him for a few months go on about why I should start a blog and also thinking about my Father-in-law keeping a hand wriitten journal for over 30 years, As I begin to investigate blogging I found so many things available but one thing happened there was a spark in me that had not been present since I stopped working. I have always enjoyed writing but never had the time but have always been told I was good. I began to think of writing as a passion and I have one friend, Billy who has always encouraged me to keep my passion alive and never allow it to be smothered. My blog did not start to be Inspirational but to be personal and about life in general but more and more I hear people say they come to me looking to be inspired or knowing they will be. This is always in the front of my mind as I post and often I feel I am not being true to me, myself but in fact I am for I am keeping my Passion very much alive.
Now for the bloggers who Inspire me the most those are the ones I am always visiting and commenting at . I believe if you are going to take time to post and I am going to take time to read your post, I should respect you enough to comment. You can also recognize the blogger that inspires me when I pass out my “linky love.” So just keep your eyes open and you will always know which bloges inspire me.
What is your biggest unfulfilled dream? What are you doing to make it happen?
I would like to be a motivational speaker who has a specialtyfocused on living with a disability and overcoming it . I am opening a window and not a door with my blog AlwaysVictoria. I continue with my life style changes which include weight loss. When I am comfortable with things and I am ready to go forth I would like to do so with an appearance on the Oprah Winfrey Show.
What movie or book character have you identified most strongly with? Why?
This is very easy for me to answer Annette Funicello who started her career on the Walt Disney’s Mickey Mouse Club, where she was its most popular Mouseketeer. Annette and the nation’s baby boomers grew up together, she had a string of film hits such as the Disney classic The Shaggy Dog and the Beach Party movie series, before going into semi-retirement to raise her three children. Annette first noticed her MS symptoms in l987 when she was making the movie Back to the Beach, a friendly spoof of her early sand-and-surf films that received both public and critical acclaim. In l989, Annette did a year-long concert tour to cheering crowds with Frankie Avalon, her long time friend and movie co-star. In l992, when rumors and gossip began to surface in the press after Annette’s MS symptoms became increasingly pronounced, she decided to go public with her condition.Although Annette has been forced by the effects of this devastating disease to retire from her stage and screen career, her indomitable spirit led her to found the popular Annette Funicello Collectible Bear Company, which is celebrating more than twenty years in business. Annette’s life story was both celebrated in a made-for TV movie, which was aired on Lifetime Television, and in her book, “A Dream Is a Wish Your Heart Makes” .
I was told by my best friend and a very wise man who suffered from MS but died of colon cancer at the age of 42 that you can never expect understanding from friends are family only acceptance. You find your understanding with someone who also suffers with the same medical disease you do for they live your life day in and day out.
If anyone else would like to ask me any questions, please feel free to leave me a comment. I would also like to ask if any of you, my readers , would like to be interviewed for I would welcome the opportunity to place others in the limelight. Thank you Brian for the questiona and to each of you who chose to stay and read my response for now you know a little more about the person behind Always Victoria.
Have a great day and Pray or think positive thoughts.


March 18th, 2005 at 7:24 am
Victoria,
You are amazing and inspirational. You are on a speaking tour without having to leave your home. For when you speak, we are moved, we listen, we applaud. I for one am so happy that you found your way into my life. Praying for Kristin and you. Love, me
March 18th, 2005 at 10:46 am
Hi schweetheart!!! *SMOOCH*~!!!
sorry I haven’t been by as much, my life has gotten better and much busier lately, sadly it eats into my blogging time!! =(
Wonderful story!! well told hon, you’re a strong person and an inpiration to many!!
love this new skin too!! very nice
March 18th, 2005 at 10:46 am
((((((((((HUGS))))))))) for you!
-G
March 18th, 2005 at 11:58 am
You are truly an amazing inspiration, one of God’s angels here on earth to teach, listen, and guide.
I was so touched by your story about the decision not to have kids and why.
Had I known before children that I would be struck with severe and quick moving RA, I wouldn’t have had children either. I feel guilty when I cannot do the things that normal mothers do. However, I do try to substitute with things I can do that the children will find special feelings and memories within.
You’re such a blessing! I am so glad that God led me to your blog,for you inspire me daily.
March 18th, 2005 at 2:46 pm
That was a good post. I appreciated learning more about you.
March 18th, 2005 at 3:34 pm
I will send as much energy as I can to Kristin, I hope she gets stronger and makes as quick a comeback to you all as possible!
March 18th, 2005 at 4:07 pm
Thanks for sharing with us!
March 18th, 2005 at 6:14 pm
You are such an inspiration to me, always up beat and appreciating every day you can. You help me remember to do that too. I’m thankful for every day I can get out of bed and go to work, and school. You’re a strong lady and can beat this! *BIG HUGS* Thanks for sharing your story!
March 18th, 2005 at 6:53 pm
Vickie it is this style of unveiling yourself in writing which reels me in and holds me captive.
My heart churns for you, MS is not an easy path.
And I promise you we are praying for your familia. gobs of sister love
March 18th, 2005 at 10:56 pm
There’s really nothing to be said. Love is all i have to offer.
March 19th, 2005 at 12:05 am
G’day Victoria, an inspiring post by an inspirational woman. Power to you. It was my pleasure to find you today via John
March 19th, 2005 at 3:28 am
If your dream is to be a motivational speaker, then you have partically achieved that dream! Your writing is indeed inspiring as well as moving. I can’t imagine anyone coming here and not leave feeling the power of your faith and courage. Keep on writing and keep on smiling!
March 19th, 2005 at 9:08 am
What a GREAT thoughtful post about why you blog. The questions from Brian were pretty good too.
Thanks for having me on your list of blogs. Now I’ll have to stay relevant
Will
March 19th, 2005 at 12:37 pm
I lurk. A lot. Here via the comment game. And thanks for reminding me WHY to comment more often. Love, love, love the new skin. You are so amazing. As someone who also struggles with chronic illness, I find you so uplifting. Thank you for blogging. What inspires you to KEEP blogging–day after day? Oh and I absolutely love being asked questions.
March 19th, 2005 at 12:37 pm
This is such a nice post! Thank you for sharing! ((hugs))
Michele sent me!
March 19th, 2005 at 1:41 pm
Hello, Michele sent me. That was a truly thoughful post, and I look forward to poking around your site some more.
March 19th, 2005 at 1:42 pm
Michele sent me.Hello.I love your site!!:razz:
March 19th, 2005 at 3:49 pm
Hi, Victoria (a most beautiful name), Michele sent me. I love your writing and you are indeed motivational and inspirational. I will be back.
March 19th, 2005 at 4:08 pm
Vickie, you’ve outdone yourself! Your responses to my questions were thoughtful and inspiring. I appreciate sharing of yourself with all of us!:smile:
March 19th, 2005 at 9:00 pm
Great post! I will have to go along with Ann. Kris and family are in my prayers.
March 20th, 2005 at 6:27 am
Extremely interesting… insigtful questions and answers… and because of that you are my Blog of the Day… no biggie but I hope you get some extra visitors out of it!:grin:
March 20th, 2005 at 7:07 am
Very inspirational !!!
March 20th, 2005 at 9:00 am
I admire your strength and perseverance. I agree with you totally about God and faith. He has guided me through many rough times. I am no bible thumper, but I could not go through life without acknowledging him on a daily basis.
Sorry to hear about your neice. A prayer is going up for Kristin and family. It is very hard when this happens to younger members. That is when it is so comforting to have family.
I came here via Denny’s blog, congrats on being his BOD. He is who inspired me to blog. I thought I wouldn’t have enough time to even get started, but I finally did, and find it very helpful in dispelling the anxieties of a stressful day.
Peace be with your Victoria, today and everyday.
March 20th, 2005 at 10:42 am
Vickie - thank you for popping in to visit me and I hope you pop by again sometime soon. I chose the right time to visit you today. I had 2 friends (both internet) who have MS and therefore can fully understand your post. Am sending you a whole lot of South African luuurve and hugs. I will be sure to pop by again and again.
March 20th, 2005 at 11:33 am
Vickie, Thanks for sharing even more of yourself with us.
Kristin and your family are in my thoughts and prayers.
March 20th, 2005 at 1:56 pm
i enjoyed reading about the power of prayer. my prayer life is extremely strong and very uplifting. currently am dealing with some horrible things in my health/personal life and prayers have certaintly helped. thanks for a wonderful post. be well. have an amazing week. amy
March 20th, 2005 at 5:53 pm
Wow. Michelle sent me, and I’m glad she did. Will certainly keep reading!
March 20th, 2005 at 6:04 pm
Michele sent me. Very nice entry. I am sending lots of good positive thoughts for Krisitn
March 20th, 2005 at 9:30 pm
What a great interview - and I know so much more ’bout you now!
HUGS & Blessings!
March 20th, 2005 at 10:32 pm
What a thoughful and inspirational post! You write beautifully but most importantly your heart shines through. Thank you for sharing yourself with us. I’ll be praying for Kristin, her family and you.
Thanks
March 21st, 2005 at 4:10 am
I will be praying for your sweet niece Kristin– I am so terribly sorry.
You are such an inspirational person, I really appreciate your thoughtful posts.
My hubby has two sisters– one was the mother of my niece that died, the other was diagnosed with MS in 1997, she was 29 then.
Hers is progressive and she was laid off of her job 3 years ago.
I admire her so much, she pretty much can’t walk any more but she gets around, is managing to travel. It’s a difficult disease, standing from the outside looking in I’d say one of the worst things is the uncertainty.
Blessings to you and thank you for sharing yourself in such a wonderful way.
March 21st, 2005 at 8:02 am
What a glorious thing you so here, Vickie. Sharing so honestly and helping people. I applaud you and your life and your struggles. Your dreams and your mission. People find answers and truth here. Solace…did I say solace? It too. *hugs*
You are a grand person.
March 21st, 2005 at 8:16 am
Beautifully written. Okay - let’s switch from green beer to “Dom” !
March 21st, 2005 at 11:37 am
What an inspirational post, having a child with a disability myself I really enjoyed reading what you had to say about yours. My perspective is only that of her mother, I always wonder if I am doing/saying the right things by her- since it is not my personal disability. Thank you for the positive thoughts.
March 21st, 2005 at 11:44 am
Hi Vickie!
Normaly I get a headache when I read a long post, but I didn’t this time, because it’s from you!
I know you here this alot, but you are in my prayers, and I’m not just typing this, I’m gona really pray for you tonight before I go to bed!
You are one of the strongest persons I know, like my mom!
I hope you had a nice weekend, Vickie, and it would be great if you ask me some questions!
March 22nd, 2005 at 12:55 pm
You are an amazing soul & I am blessed to know you even if not in person! *hugs*
March 23rd, 2005 at 8:56 pm
SERIOUS prayers going out for Kristin and the whole family.
Once again, you’ve written some powerful words…